Anxiety towards the end of life: Information for clinicians

This advice is sourced from Dr Heather Wells, Clinical Psychologist 

Anxiety is very common in advancing illness. 

For many people death is a taboo subject. Unexpressed fears about the end of life can worsen anxiety, affect quality of life and impact a persons ability to have a good ending.

Leaning in to exploring individual worries is key and requires brave empathic communication. Patients can feel overwhelmed and the conversations can't be rushed. Depending on your clinical setting it may require several appointments to explore, and your patient should control the pace.

Causes of anxiety can range from the practical to the spiritual. Some of these worries can be resolved and others can be shared, explored and often become more tolerable over time. 

Discussing fears and worries often leads on to identifing goals of care, and can help people to plan how they want to live.

Common worries we see in practice

Pain – people may worry about dying in pain; those with cancer may worry that new pain is a sign of the cancer spreading

End of treatment – people may struggle to adjust when active treatment of an illness stops eg chemotherapy

Being isolated from friends and family

Family worries – for example, worrying about being a burden 

Legal, financial and housing worries - often not explored by clinicians

Spiritual distress

The process of dying - this can be gently explained

Assessment of severity

A validated tool such as GAD-7 can be helpful to guide treatment

Treatment

Talking with a trusted professional often helps

For many people with mild levels of anxiety, self-help resources may be enough

Breathing exercises are often a helpful way to manage the symptoms of anxiety

Browsing books can be a gentle way to feel less alone and more in control

Practical help – for example, help in making advance care plans, support for housing or financial worries

Anti-depressant or anti-anxiety medication can be considered

Spiritual care - focussing on what gives meaning, legacy,reminiscence and faith if appropriate

Recommended book : Free yourself from Death Anxiety. A CBT Self-Help Guide for a Fear of Death and Dying.  Menzies and Veale 2022

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Brent South Community Palliative Care Team - based at Pembridge Hospice
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Brent South Community Palliative Care Team - based at Pembridge Hospice

T. 020 8102 5000

South Brent Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in South Brent. The team are based at Pembridge Hospice

Areas: Harlesden, Willesden, Kilburn, Neasden (south of north circular Brent, except the St Raphael's Estate) 

The team can be contacted for referrals Monday to Friday 8.30am to 5.00pm. Weekends and Bank Holidays 9.00am to 5.00pm.  

Between Monday to Friday 5.00pm and 8.30am, the Out of Hours Telephone Advice line 020 8102 5000 takes calls. Weekends and Bank Holidays 5.00pm to 9.00am.

All referrals to be made via SPA email address.

For any other email correspondence. clcht.pembridgeunit@nhs.net.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4 (DOCX)
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