Palliative care and dementia

This information is sourced from Marie Curie and Dr Ros Taylor 

There are 3 key touch points between palliative care services and dementia care

  1. Advance care planning in the early stages when people still have capacity.  Many hospices do offer support for these essential conversations about future wishes and preferences for care.

  2. During the last days when palliative care teams can support difficult ethical decisions and symptom management. These are often related to feeding and agitation. Some hospices also offer respite admission to support carers and families.

  3. Throughout the illness, hospices and palliative care teams can signpost to services to support family carers with co-ordination of care, practical and emotional support.

Where else to get support and advice

On our Caring at home - practical tips page we have compiled a list of highly recommended resources on how to manage every day tasks (such as helping someone to wash) through to how to approach difficult practical issues in the last days (such as eating and drinking).

Marie Curie have a one page summary for clinicians on key issues when caring for patients with dementia towards the end of life - such as pain and nutrition.

Some hospices in North West London offer advance care planning groups or respite admission to support carers and families.  Please see the service directory.

Dementia UK. Admiral Nurses can provide information, advice and support with any aspect of dementia.

The Alzheimer's Society offer practical help and emotional support to people living with dementia and their carers.


Related Services

24 hour Advice Line Michael Sobell Hospice

24 hour Advice Line Michael Sobell Hospice

T. 0203 824 1268

Offers support and advice on palliative care issues to GPs, Care Homes, District Nurses and hospital doctors.

It is also an Advice Line for patients and families who live in Hillingdon and need advice on any aspect of palliative care. 

The Advice Line is answered by hospice nurses in the Inpatient Unit and queries are escalated to the on-call palliative medical team if needed.

Admiral Nurse Dementia Helpline

The Admiral Nurses at Dementia UK provide information, advice and support with any aspect of dementia.

The specialist dementia nurses offer free and confidential support via the Helpline for you when you need help.

Alzheimer’s Society

The Alzheimer's Society dementia advisors can help people living with dementia and their carers. They can provide practical help and emotional support via the telephone support or the online community connecting those in similar situations.

Brent Carers Centre

Brent Carers Centre deliver a whole range of support services to address the social, emotional and financial issues that carers experience.

Care Place

London Borough of Hounslow publishes a regular factsheet called Information for Carers. It lists local, national and council services, voluntary organisations and other sources of advice and support that may be useful if you look after someone as an unpaid carer.

Carers Network

Carers Network is an independent local charity reaching over 5,300 unpaid carers in the most isolated and deprived pockets of the City of Westminster, the London Borough of Hammersmith and Fulham and the Royal Borough of Kensington and Chelsea. We have been proudly supporting carers in central London since 1991.

There is help for new carers and a carer's assessment to discuss how to maintain your health and balance your caring responsibilities with other areas of your life. It may also help you get financial support.

Carers Trust Hillingdon

Carers Trust Hillingdon offer support and guidance to unpaid carers of all ages throughout the London Borough of Hillingdon.

They provide information, advice, training and support and a range of Fact Sheets on their website.

Telephone advice centre open every day 10am to 4pm or email with enquiry to email address above.

Benefits and legal advice also available.

They have a team specifically to support young carers.

Community Action on Dementia Brent

The Dementia Hub Project  in Brent offers tailored support to people living with dementia and their families. The team can provide advice about benefits, the social care system and how to access wellbeing support such as Dementia Cafés.

Harrow Carers

Harrow Carers is an independent charity and voluntary organisation and has been the lead carers’ support agency in Harrow since 1996. Support and services are available to anyone who cares for people in the community who are ill, frail, disabled and disadvantaged.

Marie Curie

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

Related Articles

11th January 2024

An approach to organising your future care, health and wishes

27th February 2023

Caring at home - practical tips