Anxiety towards the end of life: Information for patients and carers

This information is sourced from Dr Heather Wells, Clinical Psychologist

Anxiety is a natural response to stresses in our lives and is common in people living with a serious illness.

What is anxiety?

Anxiety is a feeling of worry or fear. It can be helpful in the short term by keeping us alert and ready to act in response to danger. However, if these feelings continue for a long time or are difficult to cope with, they can affect quality of life.

Common symptoms of anxiety
  • restlessness and irritability
  • feeling tired
  • breathlessness
  • not being able to concentrate
  • muscle tension
  • disturbed sleep
  • a constant feeling of dread
  • panic attacks (sudden, intense or overwhelming fear often accompanied by chest pain, dizziness, pounding heart, sweating or shaking)
What can make anxiety worse?

Worrying about the future when you are seriously ill is normal. Issues that can make anxiety worse include:

  • Pain and other overwhelming symptoms
  • End of active treatment for an illness, people may struggle to adjust when their treatment e.g. chemotherapy stops 
  • Being isolated from friends and family
  • Family worries for example, worrying about being a burden or future care of partners or children
  • Financial worries/ Employment/ immigration status/ housing conditions
  • Spiritual distress
Managing anxiety

Here are some approaches that people may find helpful:

This 2 minute video from Every Mind Matters demonstrates a mindful breathing exercise

Recommended Resources

Marie Curie - Symptom Control - Anxiety

Published 20th January 2025

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W. https://www.ageuk.org.uk/

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This project is part of the ‘Compassionate Communities’ movement. Compassionate Communities is built on a combined ethos of a Public Health Approach to Community Development, Palliative and End of Life Care.

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Referral criteria: Adults over the age of 18 who are registered with a Hillingdon GP and who are isolated/ lonely and who have one or more long term condition. 

Services offered: Social prescribing, wellbeing services, counselling and advice.

Wellbeing services referrals email nhsnwl.h4allwellbeing@nhs.net

Counselling services via Hillingdon Mind email h4allcounselling@hillingdonmind.org.uk

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T. 020 8759 0453

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The Hospice hosts a Wellbeing Service (shared with Michael Sobell Hospice), complementary therapies, counselling, lymphoedema service and the CABS team supporting children and adolescents.

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Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Marie Curie
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Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

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The Wellbeing Hub is an online tool and resource hub developed to empower Hillingdon residents’ and improve overall feelings of wellbeing. 

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Counselling services

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H4ALL
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H4ALL supports Hillingdon residents to better manage long term conditions and brings residents into greater contact with their local community.

Referral criteria: Adults over the age of 18 who are registered with a Hillingdon GP and who are isolated/ lonely and who have one or more long term condition. 

Services offered: Social prescribing, wellbeing services, counselling and advice.

Wellbeing services referrals email nhsnwl.h4allwellbeing@nhs.net

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Samaritans
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Talking therapies

British Association for Counselling and Psychotherapy (BACP)
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T. 0145 588 3300

W. https://www.bacp.co.uk/

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Mind
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Mind

T. 0300 102 1234

W. https://www.mind.org.uk/

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Friendship and support

Compassionate Hillingdon
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Compassionate Hillingdon is a collaborative project that supports people who might need support in Hillingdon. Their work revolves around a commitment to those living with a life limiting illness, older people and those suffering from isolation. They do this by facilitating reciprocal friendships between like minded people who live close to one another across Hillingdon.

This project is part of the ‘Compassionate Communities’ movement. Compassionate Communities is built on a combined ethos of a Public Health Approach to Community Development, Palliative and End of Life Care.

Compassionate Neighbours
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Compassionate Neighbours can support by:

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Wellbeing Hub
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The Wellbeing Hub is an online tool and resource hub developed to empower Hillingdon residents’ and improve overall feelings of wellbeing. 

It provides modern, hospice wellbeing information alongside other types of wellbeing support. The wellbeing hub empowers people to enhance feelings of wellbeing in a holistic way. The online tool provides support with information to better support each person's own, unique wellbeing journey, by encouraging the setting of personal goals and accomplish tasks that align with individual wellbeing aspirations. Goals such as completing tasks (by creating and sharing a bucket list) and documenting wishes such as an advance care plan can take place.

Community palliative care teams

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They can be contacted Monday to Friday 8.00am to 4.30pm excluding bank holidays.

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