Anxiety towards the end of life: Information for patients and carers

This information is sourced from Dr Heather Wells, Clinical Psychologist

Anxiety is a natural response to stresses in our lives and is common in people living with a serious illness.

What is anxiety?

Anxiety is a feeling of worry or fear. It can be helpful in the short term by keeping us alert and ready to act in response to danger. However, if these feelings continue for a long time or are difficult to cope with, they can affect quality of life.

Common symptoms of anxiety
  • restlessness and irritability
  • feeling tired
  • breathlessness
  • not being able to concentrate
  • muscle tension
  • disturbed sleep
  • a constant feeling of dread
  • panic attacks (sudden, intense or overwhelming fear often accompanied by chest pain, dizziness, pounding heart, sweating or shaking)
What can make anxiety worse?

Worrying about the future when you are seriously ill is normal. Issues that can make anxiety worse include:

  • Pain and other overwhelming symptoms
  • End of active treatment for an illness, people may struggle to adjust when their treatment e.g. chemotherapy stops 
  • Being isolated from friends and family
  • Family worries for example, worrying about being a burden or future care of partners or children
  • Financial worries/ Employment/ immigration status/ housing conditions
  • Spiritual distress
Managing anxiety

Here are some approaches that people may find helpful:

This 2 minute video from Every Mind Matters demonstrates a mindful breathing exercise

Recommended Resources

Marie Curie - Symptom Control - Anxiety

Published 20th January 2025

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Wellbeing services

Age UK
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Age UK

T. 0800 678 1602

W. https://www.ageuk.org.uk/

Age UK provide information and support on financial, legal, health and wellbeing for older people. They support via their advice line, befriending service and day centres.

Marie Curie
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Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

Community palliative care teams

Brent North Community Palliative Care Team - based at St Luke's
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Brent North Community Palliative Care Team - based at St Luke's

T. 020 8382 8013

North Brent Community Specialist Palliative Care Nurse team provides advice and visiting to palliative care patients in North Brent. The team is based at St Lukes Hospice.

Areas: Queensbury, Fryent, Welsh Harp, Barnhill, Kenton, Northwick Park, Preston, Sudbury, Wembley Central, Alperton, Tokyngton

The team can be contacted for referrals Monday to Sunday 8.30am to 4.30pm. 

After 4.30pm the Out of Hours Telephone Advice line 020 8382 8000 operates and calls will be taken by a nurse on St Lukes inpatient unit

Referral form for clinician use only.

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Brent South Community Palliative Care Team - based at Pembridge Hospice
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Brent South Community Palliative Care Team - based at Pembridge Hospice

T. 020 8102 5000

South Brent Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in South Brent. The team are based at Pembridge Hospice

Areas: Harlesden, Willesden, Kilburn, Neasden (south of north circular Brent, except the St Raphael's Estate) 

All referrals to be made via the CLCH Single Point of Access Service (SPA) email address and will be processed during working hours of Monday to Friday 9.00am to 4:30pm. Any referrals sent outside of this time period will be processed on the next working day.

For ALL urgent referrals, both in and out of working hours, please also call Pembridge (as per current process) on the 24 hour number above.

For any other email correspondence. clcht.pembridgeunit@nhs.net.

Referral form for clinician use only.

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St John's Hospice at Home
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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Referral form for clinician use only.

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St John's Hospice Inpatient unit
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St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

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St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

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St Luke's Hospice at Home
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St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

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Counselling services

British Association for Counselling and Psychotherapy (BACP)
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British Association for Counselling and Psychotherapy (BACP)

T. 0145 588 3300

W. https://www.bacp.co.uk/

British Association for Counselling and Psychotherapy signposts people to appropriate counselling services across the UK. Please search for a qualified counsellor on the ‘How to find a therapist’ page. 

Samaritans
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Samaritans

T. 116 123

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Samaritans provides a 24 hour, 7 days a week advice line.

Talking therapies

British Association for Counselling and Psychotherapy (BACP)
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British Association for Counselling and Psychotherapy (BACP)

T. 0145 588 3300

W. https://www.bacp.co.uk/

British Association for Counselling and Psychotherapy signposts people to appropriate counselling services across the UK. Please search for a qualified counsellor on the ‘How to find a therapist’ page. 

CNWL Talking Therapies Service
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CNWL Talking Therapies Service

T. 01895 206 800

W. https://talkingtherapies.cnwl.nhs.uk/

CNWL Talking Therapies Service provides psychological therapies. Self-referral accepted via the website for adults who are registered with a Brent, Harrow or Hillingdon GP.

Support is available for a range of difficulties, such as low mood or depression, anxiety, and stress, phobias, physical health anxiety, PTSD and Insomnia.

Mind
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Mind

T. 0300 102 1234

W. https://www.mind.org.uk/

Provides information, advice and support to anyone with a mental health problem through its helpline and website. 

Friendship and support

Compassionate Neighbours
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Compassionate Neighbours can support by:

  • Visiting weekly for a cup of tea and a chat, offering friendship and a listening ear
  • Helping you do the things you like doing
  • Helping you stay connected to your friends and the community

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