Assessing cancer pain

Pain can be complex to assess and influenced by multiple factors. Total pain is a concept that includes physical, emotional and spiritual pain and is strongly influenced by practical issues and worries about the future.

This is a pragmatic summary for assessing a patient in the community. Please see the references below for further reading.

Red flags

Remember to consider bowel obstruction and spinal cord compression as causes of acute pain

Key clinical features to assess
  • Review underlying diagnosis (e.g. known site of tumours) and prexisting co-morbidities - ischaemic heart disease, osteoarthritis etc
  • Medication review. What analgesics are they currently taking? Are the medicines giving 24 hour pain relief and what helps most? 
  • Examination of the painful area to try and elucidate the cause
  • Remember referred pain.
  • Remember shingles which is common in people with advanced disease or on steroids
  • Assessment of mood and other key concerns
An initial approach to treatment
  • Treat according to likely cause (see table)
  • If cause of pain unknown investigate if appropriate and follow the WHO ladder
  • Remember antiemetics and laxatives if prescribing opioids
  • Review response to initial treatment

Common causes of pain and initial treatments: 

Type of pain Possible cause  An initial approach to treatment
Burning, shooting, tingling, altered sensation, dermatomal distribution Nerve pain (due to nerve compression, for example) See Neuropathic pain
Headache associated with nausea, worse on lying down, especially in the mornings Increased intracranial pressure from brain metastases Start on 6-8mgs Dexamethasone and discuss with oncologist
Pain worse on weight bearing or tender areas of bone Bone pain (e.g. due to metastasis or fracture) See Bone pain 

Abdominal pain

 

Constipation

Dyspepsia

Liver metastases

Peritoneal metastases (e.g bowel or gynaecological)

Bowel obstruction

Renal colic

Biliary colic

 See Abdominal pain 
Chest pain

Rib or pleural metastases 

Consider pre-existing cardiac and respiratory causes

 See Bone pain 

Recommended Resources

Macmillan - Managing cancer pain

Published 1st August 2022

Marie Curie - Pain in terminal illness

Published 11th May 2021

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Brent North Community Palliative Care Team - based at St Luke's

T. 020 8382 8013

North Brent Community Specialist Palliative Care Nurse team provides advice and visiting to palliative care patients in North Brent. The team is based at St Lukes Hospice.

Areas: Queensbury, Fryent, Welsh Harp, Barnhill, Kenton, Northwick Park, Preston, Sudbury, Wembley Central, Alperton, Tokyngton

The team can be contacted for referrals Monday to Sunday 8.30am to 4.30pm. 

After 4.30pm the Out of Hours Telephone Advice line 020 8382 8000 operates and calls will be taken by a nurse on St Lukes inpatient unit

Referral form for clinician use only.

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Brent South Community Palliative Care Team - based at Pembridge Hospice
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Brent South Community Palliative Care Team - based at Pembridge Hospice

T. 020 8102 5000

South Brent Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in South Brent. The team are based at Pembridge Hospice

Areas: Harlesden, Willesden, Kilburn, Neasden (south of north circular Brent, except the St Raphael's Estate) 

All referrals to be made via the CLCH Single Point of Access Service (SPA) email address and will be processed during working hours of Monday to Friday 9.00am to 4:30pm. Any referrals sent outside of this time period will be processed on the next working day.

For ALL urgent referrals, both in and out of working hours, please also call Pembridge (as per current process) on the 24 hour number above.

For any other email correspondence. clcht.pembridgeunit@nhs.net.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Community Palliative Care Team - based at Meadow House Hospice
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Community Palliative Care Team - based at Meadow House Hospice

T. 020 8967 5179

W. https://www.lnwh.nhs.uk/meadow-house-hospice/#community-palliative-care-team

The Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in Ealing and Hounslow. The team are based at Meadow House Hospice.

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The team is comprised of medical consultants, specialist nurses, physiotherapists, occupational therapists, social workers, a bereavement support officer and a patient and carer advocacy worker

The team can be contacted for referrals Monday to Friday 9.00am to 5.00pm.

Between Monday to Friday 5.00pm and 8.30am, the Out of Hours Telephone Advice line 020 8102 5000 takes calls. Weekends and Bank Holidays 5.00pm to 9.00am.

Referral form for clinician use only.

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Community Palliative Care Team - based at St. John's Hospice

T. 020 7806 4040

St. John's Hospice provides advice and visiting palliative care patients for some parts of Central London.

Referrals can be made Monday to Sunday 9.00am to 5.00pm.

Referral form for clinician use only.

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Community Palliative Care Team (South) - Royal Trinity

T. 020 7787 1062

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They can be contacted 8am -8pm  7 days a week.

Referral form for clinician use only.

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District Nurses Night Service Hounslow
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Referrals to the night service can be made Monday to Sunday 5.00pm to 7.00am.

Harrow Community Palliative Care
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Harrow Community Palliative Care

T. 020 8102 6163

Harrow Community Specialist Palliative Care Team (LNWHT) provides advice and visiting to palliative care patients in Harrow.

They can be contacted Monday to Friday 8.30am to 4.30pm.

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Referral form for clinician use only.

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Hillingdon Community Palliative Care Team
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Hillingdon Palliative Care Team (hosted by NHS CNWL) provides specialist advice and visiting to palliative care patients living in Hillingdon. Each GP practice has their own named Clinical Nurse Specialist ( CNS ). A Triage CNS manages calls and referrals each day and they have the option to escalate to consultants if needed.

They can be contacted Monday to Friday 8.00am to 4.30pm excluding bank holidays.

Out of hours phone Michael Sobell Hospice 24 hour Advice Line on 020 3824 1268

Referral form for clinician use only.

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Pembridge Community Palliative Care Team (North)

T. 0208 102 5383 / 0208 102 5000 (out of hours)

Pembridge Community Palliative Nurse Team (North) provides advice and visiting palliative care patients of Hammersmith and Fulham, Central London and West London.

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Referral form for clinician use only.

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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Referral form for clinician use only.

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St John's Hospice Inpatient unit
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St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

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St Luke's Hospice at Home
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St Luke's Hospice at Home

T. 0208 382 8020 / 8050

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Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

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Cancer services

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Cancer Black Care

T. 0734 047 1970

W. https://www.cancerblackcare.org.uk/

Provides support for all those living with and affected by cancer, with an emphasis on Black people and people of colour. 

Colostomy UK
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Colostomy UK

T. 0800 328 4257

W. https://www.colostomyuk.org/

Information and support about stoma care. There is a 24 hour helpline.

Crohns and Colitis UK
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Crohns and Colitis UK

T. 0300 222 5700

W. https://crohnsandcolitis.org.uk/

Crohns and Colitis UK provides information about and helps to find support from others in the Crohn’s and Colitis community.

Harlington Hospice
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Harlington Hospice

T. 020 8759 0453

W. https://www.harlingtonhospice.org/

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The Hospice hosts a Wellbeing Service (shared with Michael Sobell Hospice), complementary therapies, counselling, lymphoedema service and the CABS team supporting children and adolescents.

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Referral form for clinician use only.

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T. 0800 0184 724

W. https://iasupport.org/about/about-ia/

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Visit the website to get help with paying bills, advice on benefits or treatment, or to just chat.

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Macmillan information and support centre - Hillingdon Hospital

T. 01895 279 169

W. https://thh.nhs.uk/macmillan-support-and-information-centre/

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  • Information on all aspects of living with cancer and treatments
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Face to face advice available Monday to Friday 9.30am to 2.00pm. Telephone advice available Monday to Friday 9.30am to 5.00pm.

Address: 1st floor, Hillingdon Hospital (Close to main outpatients).

Maggie’s
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Maggie’s

T. 0300 123 1801

W. https://www.maggies.org/

Maggie's has a network of centres in many locations throughout the UK. It provides free information about cancer, financial benefts and offers emotional and social support to people with cancer, as well as their family, and friends.

Marie Curie
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Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

OUTpatients
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A safe space for anybody who identifes as LGBTIQ+ and has had an experience with any kind of cancer at any stage. Also produces resources about LGBT cancer experiences. 

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This clinic is for patients suffering from lymphoedema in any part of their body as a result of cancer treatment or chronic conditions.

The lymphoedema care provided is free to NHS patients registered with a GP within our catchment area. The NHS service is provided within St John and St Elizabeth Hospital under the hospice or at Charing Cross Hospital.

Teenage Cancer Trust
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Teenage Cancer Trust

T. 020 7612 0370

W. https://www.teenagecancertrust.org/

A UK-wide charity devoted to improving the lives of teenagers and young adults with cancer. There is a support network for young people with cancer, their friends and families. 

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Young lives vs Cancer

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Young lives vs Cancer support young people under 25 with cancer, and their families, to get the help they need during their cancer treatment and beyond, including bereaved families living with emotional distress. 

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