Oedema (swelling): Information for patients and carers

What is oedema?

Oedema is the medical word for swelling caused by fluid building up under the skin. It most often affects the legs and ankles, but can also affect the arms, back, or stomach- especially if you spend a lot of time lying down.

Your body normally keeps fluid moving through your tissues in a careful balance. When illness disrupts this balance, fluid can collect and cause swelling.

What does it look and feel like?

Puffy, swollen or shiny skin 

Heaviness, aching, or stiffness especially in the legs

Pitting -pressing on the skin leaves a dent that takes time to disappear

When fluids collect in the abdominal cavity this is called ascites 

In severe cases fluid may weep or leak through the skin

Why does it happen?

There are several reasons oedema can develop during a serious illness:

  • The illness itself — heart, kidney, or liver problems can affect the fluid balance in the body. 

  • Some medicines, including steroids and anti-inflammatory painkillers (e.g. ibuprofen, naproxen)

  • Spending long periods of time in bed or in a chair

  • Low protein levels in the blood

What can help?
  • Raising legs above hip level when sitting or lying can reduce swelling and ease discomfort

  • Keep moving gently - even small movements and gentle exercise can help fluid circulate

  • Skin care - Swollen skin is fragile. Keep it clean and moisturised, and avoid tight clothing or anything that cuts in

  • Water tablets (diuretics) are sometimes tried by a doctor to help the body get rid of excess fluid. This depends on the cause of the swelling. Swelling due to heart failure will respond to diuretics whereas other causes e.g. due to immobility may not respond.

  • Fluid collecting in the abdomen (ascites) or around the lung (pleural effusion) can easily be drained as an outpatient

  • Compression bandaging may help comfort and reduce weeping legs. This is done by district nurses
What is Lymphoedema?

Lymphoedema is a specific type of swelling caused by damage or blockage to the lymphatic drainage system itself often due to cancer affecting lymph nodes. Lymphoedema doesn't fluctuate (change) with position or medication in the same way as general oedema and it is managed differently. For more information on lymphoedema click here

mceclip0.png

Share

Related Services

Palliative care teams

24 hour Advice Line Pembridge Hospice
Close

24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

Pembridge Hospice provides palliative care services and advice to the residents of Brent, Central London, West London and Hammermith and Fulham.

This is a 24 hour, 7 days a week telephone advice line.

Referral form for clinician use only.

 

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
24 hour Helpline Pall24 for North Brent and Harrow
Close

24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Brent North Community Palliative Care Team - based at St Luke's
Close

Brent North Community Palliative Care Team - based at St Luke's

T. 020 8382 8013

North Brent Community Specialist Palliative Care Nurse team provides advice and visiting to palliative care patients in North Brent. The team is based at St Lukes Hospice.

Areas: Queensbury, Fryent, Welsh Harp, Barnhill, Kenton, Northwick Park, Preston, Sudbury, Wembley Central, Alperton, Tokyngton

The team can be contacted for referrals Monday to Sunday 8.30am to 4.30pm. 

After 4.30pm the Out of Hours Telephone Advice line 020 8382 8000 operates and calls will be taken by a nurse on St Lukes inpatient unit

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Brent South Community Palliative Care Team - based at Pembridge Hospice
Close

Brent South Community Palliative Care Team - based at Pembridge Hospice

T. 020 8102 5000

South Brent Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in South Brent. The team are based at Pembridge Hospice

Areas: Harlesden, Willesden, Kilburn, Neasden (south of north circular Brent, except the St Raphael's Estate) 

All referrals to be made via the CLCH Single Point of Access Service (SPA) email address and will be processed during working hours of Monday to Friday 9.00am to 4:30pm. Any referrals sent outside of this time period will be processed on the next working day.

For ALL urgent referrals, both in and out of working hours, please also call Pembridge (as per current process) on the 24 hour number above.

For any other email correspondence. clcht.pembridgeunit@nhs.net.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St John's Hospice at Home
Close

St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St John's Hospice Inpatient unit
Close

St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St Luke's Hospice at Home
Close

St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St Luke's Hospice Inpatient Unit
Close

St Luke's Hospice provides inpatient palliative care services to the residents of Brent.

This is an inpatient unit with 12 beds. Please contact for admissions and advice.

Referrals can be made Monday to Sunday 9.00am to 4.00pm. 

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Lymphoedema services

British Lymphology Society
Close

British Lymphology Society

W. https://www.thebls.com/directory/london

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

St John's Hospice Lymphoedema Care
Close

This clinic is for patients suffering from lymphoedema in any part of their body as a result of cancer treatment or chronic conditions.

The lymphoedema care provided is free to NHS patients registered with a GP within our catchment area. The NHS service is provided within St John and St Elizabeth Hospital under the hospice or at Charing Cross Hospital.

Pharmacies

Carters Pharmacy
Close

Carters Pharmacy

T. 020 8903 4222

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 524-526 High Road, Wembley, HA9 7BS

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 6.00pm

Churchills Pharmacy
Close

Churchills Pharmacy

T. 020 8907 3511

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 207 Kenton Road, Harrow, HA3 0HD

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 1.00pm

G.Lowe Pharmacy
Close

G.Lowe Pharmacy

T. 020 8904 4197

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 203 East Lane, North Wembley, HA0 3NG

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.30am to 5.00pm

Related Articles

29th May 2025

Lymphoedema: Information for patients and carers

Feedback