Managing fluid overload in end stage heart failure

Managing fluid overload in patients who have been identified as having end stage heart failure is key to quality of life

These patients often present with:

  • really heavy legs, often weeping fluid
  • worsening mobility
  • severe breathlessness
  • anorexia and insomnia

The aim of management is to promote diuresis and comfort and avoid unnecessary hospital admission if possible.

Key clinical features for a clinician to assess in the community 
  • Extensive peripheral oedema, raised JVP, possible ascites, pulmonary crepitations 
  • Daily weight is the most reliable marker of fluid retention - a gain of more than 1–2 kg over 1–2 days indicates accumulation
  • If possible check baseline U&E and creatinine - worsening renal function requires caution with diuretic escalation (but comfort is the priority and blood tests shouldn't delay treatment)
  • Review for reversible contributors: dietary salt excess, medication non-adherence, concurrent infection, or NSAIDs
An initial approach to treatment 
  • Optimise oral diuretics first - these can be given in liquid form if swallowing is difficult
  • If worsening fluid overload on oral Furosemide, consider switching to oral Bumetanide which is better absorbed through an oedematous bowel wall (40 mg oral Furosemide = 1 mg oral Bumetanide)
  • Add Bendroflumethiazide 2.5 mg three times weekly, keeping an eye on blood pressure 
  • Involve the community heart failure team early - they can advise on diuretic titration and subcut Furosemide initiation
  • Consider fluid restriction to <1.5 litres
  • Review medications that can be stopped
Specialist care
  • If Bendroflumethiazide is ineffective oral Metolazone 2.5 mg twice weekly may help
  • Metolazone needs careful monitoring of blood pressure and electrolytes (particularly potassium)
  • When oral treatment fails subcut Furosemide in a syringe pump is an effective treatment to keep patients at home. The suggested 24 hour subcut dose of Furosemide is usually twice the total daily oral dose
Top tips
  • Switching from Furosemide to Bumetanide can restore diuretic response when gut oedema is limiting oral absorption - try this before escalating to subcut or IV treatment
  • Subcut Furosemide is an evidence-based alternative to IV in the community 
  • Daily weighing is the most practical monitoring tool - make a clear action plan with the patient and carer for what to do if weight rises
  • Do not continue to check U&E if worsening renal function would not change your management - this causes distress without benefit
  • Monitor the syringe pump site for signs of inflammation and resite if needed
  • Consider catheterisation if increased diuresis is really disruptive to sleep
  • Encourage the patient to avoid added salt - this can make a real difference

Recommended Resources

Isle of Wight Palliative Care Symptom Control Guidelines (2024)

Published 1st August 2024

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