Mouth care: Information for patients and carers

This information is sourced from  Marie Curie and from the Hospice in the Weald Informed Guide

Good mouth care is crucial. Mouth problems are very uncomfortable and can have a negative impact on someone’s quality of life, including their ability to eat, speak and swallow.  

Mouths easily become sore and dry with advancing illness, and especially after repeated antibiotics and chemotherapy.

Top tips on mouth care
  • Keep the mouth and lips clean and moist if possible
  • Ideally provide mouth care when the person is semi-upright, to avoid choking. If that’s not possible, make sure fluid isn’t building up in their mouth as you give mouth care
  • Brush teeth twice a day, and use a very soft toothbrush for a sore mouth - childrens tootbrushes and toothpaste may help. Use a non-foaming toothpaste for people who have difficulty swallowing
  • Take out and clean dentures or dental plates at least once a day and rinse them after eating
Dry mouth
  • Encourage regular sips of water or other favourite cold drinks. A small plant sprayer might help
  • Suck on ice cubes (perhaps made from a favourite drink), ice chips or ice lollies
  • Chew gum or suck on sweets to stimulate the production of saliva - as long as there is no choking risk
  • Moisturise lips with lip balm or a water-based gel such as Oralieve or KY-Jelly.
  • It is best to avoid petroleum-based jelly such as Vaseline as these can be drying.  (Vaseline and petroleum products are also best avoided if on oxygen therapy as this can be a fire hazard). 
  • Ask the doctor, nurse or pharmacist about saliva substitute sprays and gels
  • Ask the doctor or nurse to review medications as many medicines dry up saliva
Sore mouth
  • Avoid acidic foods such as citrus foods (e.g. lemons, oranges) and vinegar (pickles) and very spicy foods (eg curry)
  • Try drinking through a straw to stop liquids coming into contact with the sorest part of your mouth
  • Soothe the mouth with cold soft foods like custard, yoghurt, ice cream and jelly 
  • Allow hot food to cool down a little before eating
  • Try softer foods like porridge, pasta or fish with a sauce, egg dishes and milky puddings
  • Add gravy or sauces to moisten food
  • Avoid dry foods like biscuits, toast and crisps, but if these are enjoyed, chew them well and have plenty to drink
  • Ask the doctor, nurse or pharmacist about mouthwashes and pain killers. Salt water is a good mouthwash - just add half a teaspoon of salt to a cup of warm water
When to ask for more help

A defined area of soreness, redness or white patches may be a sign of infection (eg thrush or cold sores) which may need medication.

Let the doctor or nurse know if mouth problems mean that swallowing pills is difficult so that liquid or soluble painkillers can be prescribed. Liquid food supplements may help if it is too painful or difficult to eat solid food.

Dental visits or home dental visits can be very helpful if you are able to access these.

 

Sources

Marie Curie - Mouth problems and mouth care

Published 3rd August 2022

Hospice in the Weald Informed Guide to Mouth Care

Published 29th December 2022

Share

Related Services

24 hour Advice Line Michael Sobell Hospice
Close

24 hour Advice Line Michael Sobell Hospice

T. 0203 824 1268

Offers support and advice on palliative care issues to GPs, Care Homes, District Nurses and hospital doctors.

It is also an Advice Line for patients and families who live in Hillingdon and need advice on any aspect of palliative care. 

The Advice Line is answered by hospice nurses in the Inpatient Unit and queries are escalated to the on-call palliative medical team if needed.

Brent North Community Palliative Care Team - based at St Luke's
Close

Brent North Community Palliative Care Team - based at St Luke's

T. 020 8382 8013

North Brent Community Specialist Palliative Care Nurse team provides advice and visiting to palliative care patients in North Brent. The team is based at St Lukes Hospice.

Areas: Queensbury, Fryent, Welsh Harp, Barnhill, Kenton, Northwick Park, Preston, Sudbury, Wembley Central, Alperton, Tokyngton

The team can be contacted for referrals Monday to Sunday 8.30am to 4.30pm. 

After 4.30pm the Out of Hours Telephone Advice line 020 8382 8000 operates and calls will be taken by a nurse on St Lukes inpatient unit

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V3 (PDF)
Care Place
Close

London Borough of Hounslow publishes a regular factsheet called Information for Carers. It lists local, national and council services, voluntary organisations and other sources of advice and support that may be useful if you look after someone as an unpaid carer.

Carers Trust Hillingdon
Close

Carers Trust Hillingdon offer support and guidance to unpaid carers of all ages throughout the London Borough of Hillingdon.

They provide information, advice, training and support and a range of Fact Sheets on their website.

Telephone advice centre open every day 10am to 4pm or email with enquiry to email address above.

Benefits and legal advice also available.

They have a team specifically to support young carers.

Community Palliative Care Team - based at Meadow House Hospice
Close

Community Palliative Care Team - based at Meadow House Hospice

T. 020 8967 5179

W. http://meadowhouse.lnwh.nhs.uk/our-services/community-team/

The Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in Ealing and Hounslow. The team are based at Meadow House Hospice

The team can be contacted for referrals Monday to Friday 8.30am to 4.30pm. Weekends 9.00am to 5.00pm.  

Between Monday to Friday 5.00pm and 8.30am, the Out of Hours Telephone Advice line 020 8102 5000 takes calls. Weekends and Bank Holidays 5.00pm to 9.00am.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V3 (PDF)
Community Palliative Care Team - based at St. John's Hospice
Close

Community Palliative Care Team - based at St. John's Hospice

T. 020 7806 4040

St. John's Hospice provides advice and visiting palliative care patients for some parts of Central London.

Referrals can be made Monday to Sunday 9.00am to 5.00pm.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V3 (PDF)
Community Palliative Care Team (South) - Royal Trinity
Close

Community Palliative Care Team (South) - Royal Trinity

T. 020 7787 1062

Royal Trinity Hospice (South) provides advice and visiting palliative care patients of Hammersmith and Fulham, Central London and West London.

They can be contacted 24 hours a day, 7 days a week.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V3 (PDF)
Ealing Carers
Close

Your Voice in Health and Social Care (YVHSC) are providing the Ealing Carers Service to support carers who have caring responsibilities living within the borough of Ealing.

Harrow Carers
Close

Harrow Carers is an independent charity and voluntary organisation and has been the lead carers’ support agency in Harrow since 1996. Support and services are available to anyone who cares for people in the community who are ill, frail, disabled and disadvantaged.

Harrow Community Palliative Care
Close

Harrow Community Palliative Care

T. 0208 382 8084

Harrow Community Specialist Palliative Care Team (LNWHT) provides advice and visiting to palliative care patients in Harrow.

They can be contacted Monday to Sunday 8.30am to 4.30pm.

Out of Hours the Pall24 Helpline can be used 3000 200 224

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V3 (PDF)
Pembridge Community Palliative Care Team (North)
Close

Pembridge Community Palliative Care Team (North)

T. 0208 102 5383 / 0208 102 5000 (out of hours)

Pembridge Community Palliative Nurse Team (North) provides advice and visiting palliative care patients of Hammersmith and Fulham, Central London and West London.

They can be contacted Monday to Friday 8.30am to 5.00pm.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V3 (PDF)

Related Articles

27th February 2023

Caring at home - practical tips

Feedback