Eating and drinking towards the end of life: Information for carers

Appetite and thirst naturally decrease towards the end of life. This is a normal part of the body slowing down.

What to expect
  • People will gradually eat and drink less, sometimes only a few bites or sips
  • Interest in food may come and go unpredictably 
  • People may become fully dependent on their carer for feeding as their condition changes
  • Coughing or gagging are normal as muscles gets weaker and coordination slows down
  • Eating and drinking usually stop gradually as someone becomes less conscious
Practical tips
  • Let the person choose if and when they want to eat or drink  
  • Offer small amounts of soft food, especially the person’s favourite flavours
  • It is important not to force food or drink onto someone who no longer wants it as this can cause them discomfort
  • Forget scheduled mealtimes—offer food and drink when wanted
  • Continue to offer a variety of soft foods and sips of water with a teaspoon or straw for as long as the person is conscious 
  • Remember to sit them up when offering food and fluids to avoid choking
  • Prepare small, easy-to-swallow portions; liquidising foods can help
  • Use ice chips or a small spray bottle to mist the mouth to keep their mouth moist without giving too much liquid
  • Create a calm, comfortable environment during mealtimes
  • Be ready with practical items like tissues or a sick bowl if needed
  • Frequent mouth care can prevent the person feeling thirsty, and will keep them comfortable when they no longer response to offers

NHS Herts Valleys have produced a helpful leaflet (see downloads) with suggested food and drinks.

If appetite is very poor and calories definitely need increasing food can be fortified e.g. with powdered skimmed milk added to hot chocolate or coffee, +/- a spoon of cream or ice cream.

When a person is no longer able to swallow some people want them to have fluids via other routes like a drip, but at the end of life this offers little, if any, benefit. 

The video below from Hospice in the Weald explains how to approach giving food and drink to someone towards the end of life.

Recommended Resources

Hospice in the Weald Informed Guide to Eating and Drinking Part 1

Published 17th May 2019

Hospice in the Weald Informed Guide to Eating and Drinking Part 2

Published 17th May 2019

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Downloads

Related Services

Hospices

24 hour Advice Line Michael Sobell Hospice
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24 hour Advice Line Michael Sobell Hospice

T. 0203 824 1268

Offers support and advice on palliative care issues to GPs, Care Homes, District Nurses and hospital doctors.

It is also an Advice Line for patients and families who live in Hillingdon and need advice on any aspect of palliative care. 

The Advice Line is answered by hospice nurses in the Inpatient Unit and queries are escalated to the on-call palliative medical team if needed.

Harlington Hospice
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Harlington Hospice

T. 020 8759 0453

W. https://www.harlingtonhospice.org/

Harlington Hospice provides a wide range of palliative care services to the residents of Hillingdon and surrounding areas.

The Hospice hosts a Wellbeing Service (shared with Michael Sobell Hospice), complementary therapies, counselling, lymphoedema service and the CABS team supporting children and adolescents.

The Hospice also hosts Harlington Hospice@Home team, mainly providing night sits, plus inpatient beds based at Michael Sobell Hospice (MSH) in Northwood.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Hospice UK
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Hospice UK can help find a hospice, provide infromation and support about end of life care and guidance to plan ahead.

Michael Sobell Hospice Inpatient Unit (MSH)
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Michael Sobell Hospice Inpatient Unit (MSH)

T. 020 8106 9201

W. https://www.harlingtonhospice.org/michael-sobell-house/

The Michael Sobell Hospice provides a range of palliative services for people with advancing illness.

The Hospice has 10 beds in its refurbished inpatient unit and looks after people with complex symptoms as well as those close to the end of their life.

Many people have a short admission and get back home agian.

The Hospice hosts the 24 hour Hillingdon advice line  on 020 3824 1268

The Hospice is part of Harlington Hospice, and shares the Wellbeing Service with the Harlington team, and hosts the Harlington Hospice@Home team

Please use the referral form below.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Friendship and support

Wellbeing Hub
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The Wellbeing Hub is an online tool and resource hub developed to empower Hillingdon residents’ and improve overall feelings of wellbeing. 

It provides modern, hospice wellbeing information alongside other types of wellbeing support. The wellbeing hub empowers people to enhance feelings of wellbeing in a holistic way. The online tool provides support with information to better support each person's own, unique wellbeing journey, by encouraging the setting of personal goals and accomplish tasks that align with individual wellbeing aspirations. Goals such as completing tasks (by creating and sharing a bucket list) and documenting wishes such as an advance care plan can take place.

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