Oedema (swelling): Information for patients and carers

What is oedema?

Oedema is the medical word for swelling caused by fluid building up under the skin. It most often affects the legs and ankles, but can also affect the arms, back, or stomach- especially if you spend a lot of time lying down.

Your body normally keeps fluid moving through your tissues in a careful balance. When illness disrupts this balance, fluid can collect and cause swelling.

What does it look and feel like?

Puffy, swollen or shiny skin 

Heaviness, aching, or stiffness especially in the legs

Pitting -pressing on the skin leaves a dent that takes time to disappear

When fluids collect in the abdominal cavity this is called ascites 

In severe cases fluid may weep or leak through the skin

Why does it happen?

There are several reasons oedema can develop during a serious illness:

  • The illness itself — heart, kidney, or liver problems can affect the fluid balance in the body. 

  • Some medicines, including steroids and anti-inflammatory painkillers (e.g. ibuprofen, naproxen)

  • Spending long periods of time in bed or in a chair

  • Low protein levels in the blood

What can help?
  • Raising legs above hip level when sitting or lying can reduce swelling and ease discomfort

  • Keep moving gently - even small movements and gentle exercise can help fluid circulate

  • Skin care - Swollen skin is fragile. Keep it clean and moisturised, and avoid tight clothing or anything that cuts in

  • Water tablets (diuretics) are sometimes tried by a doctor to help the body get rid of excess fluid. This depends on the cause of the swelling. Swelling due to heart failure will respond to diuretics whereas other causes e.g. due to immobility may not respond.

  • Fluid collecting in the abdomen (ascites) or around the lung (pleural effusion) can easily be drained as an outpatient

  • Compression bandaging may help comfort and reduce weeping legs. This is done by district nurses
What is Lymphoedema?

Lymphoedema is a specific type of swelling caused by damage or blockage to the lymphatic drainage system itself often due to cancer affecting lymph nodes. Lymphoedema doesn't fluctuate (change) with position or medication in the same way as general oedema and it is managed differently. For more information on lymphoedema click here

 

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Related Services

Palliative care teams

24 hour Advice Line Michael Sobell Hospice
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24 hour Advice Line Michael Sobell Hospice

T. 0203 824 1268

Offers support and advice on palliative care issues to GPs, Care Homes, District Nurses and hospital doctors.

It is also an Advice Line for patients and families who live in Hillingdon and need advice on any aspect of palliative care. 

The Advice Line is answered by hospice nurses in the Inpatient Unit and queries are escalated to the on-call palliative medical team if needed.

24 hour Advice Line Pembridge Hospice
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24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

Pembridge Hospice provides palliative care services and advice to the residents of Brent, Central London, West London and Hammermith and Fulham.

This is a 24 hour, 7 days a week telephone advice line.

Referral form for clinician use only.

 

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
24 hour Helpline Pall24 for North Brent and Harrow
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24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Brent North Community Palliative Care Team - based at St Luke's
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Brent North Community Palliative Care Team - based at St Luke's

T. 020 8382 8013

North Brent Community Specialist Palliative Care Nurse team provides advice and visiting to palliative care patients in North Brent. The team is based at St Lukes Hospice.

Areas: Queensbury, Fryent, Welsh Harp, Barnhill, Kenton, Northwick Park, Preston, Sudbury, Wembley Central, Alperton, Tokyngton

The team can be contacted for referrals Monday to Sunday 8.30am to 4.30pm. 

After 4.30pm the Out of Hours Telephone Advice line 020 8382 8000 operates and calls will be taken by a nurse on St Lukes inpatient unit

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Brent South Community Palliative Care Team - based at Pembridge Hospice
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Brent South Community Palliative Care Team - based at Pembridge Hospice

T. 020 8102 5000

South Brent Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in South Brent. The team are based at Pembridge Hospice

Areas: Harlesden, Willesden, Kilburn, Neasden (south of north circular Brent, except the St Raphael's Estate) 

All referrals to be made via the CLCH Single Point of Access Service (SPA) email address and will be processed during working hours of Monday to Friday 9.00am to 4:30pm. Any referrals sent outside of this time period will be processed on the next working day.

For ALL urgent referrals, both in and out of working hours, please also call Pembridge (as per current process) on the 24 hour number above.

For any other email correspondence. clcht.pembridgeunit@nhs.net.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Community Palliative Care Team - based at Meadow House Hospice
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Community Palliative Care Team - based at Meadow House Hospice

T. 020 8967 5179

W. https://www.lnwh.nhs.uk/meadow-house-hospice/#community-palliative-care-team

The Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in Ealing and Hounslow. The team are based at Meadow House Hospice.

The team will visit patients with progressive life limiting illness in their own homes. They provide specialist advice around pain and symptom control and support for patients, their families, and carers during the last stages of illness. They also support patients wishing to die at home through coordination with GPs and hospital teams.

The team is comprised of medical consultants, specialist nurses, physiotherapists, occupational therapists, social workers, a bereavement support officer and a patient and carer advocacy worker

The team can be contacted for referrals Monday to Friday 9.00am to 5.00pm.

Between Monday to Friday 5.00pm and 8.30am, the Out of Hours Telephone Advice line 020 8102 5000 takes calls. Weekends and Bank Holidays 5.00pm to 9.00am.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Community Palliative Care Team - based at St. John's Hospice
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Community Palliative Care Team - based at St. John's Hospice

T. 020 7806 4040

St. John's Hospice provides advice and visiting palliative care patients for some parts of Central London.

Referrals can be made Monday to Sunday 9.00am to 5.00pm.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Community Palliative Care Team (South) - Royal Trinity
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Community Palliative Care Team (South) - Royal Trinity

T. 020 7787 1062

Royal Trinity Hospice (South) provides advice and visiting palliative care patients of Hammersmith and Fulham, Central London and West London.

They can be contacted 8am -8pm  7 days a week.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Harrow Community Palliative Care
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Harrow Community Palliative Care

T. 020 8102 6163

Harrow Community Specialist Palliative Care Team (LNWHT) provides advice and visiting to palliative care patients in Harrow.

They can be contacted Monday to Friday 8.30am to 4.30pm.

They are based at Honeypot Lane Health Centre, 839 Honeypot Lane, HA7 1AT.

Out of Hours the Pall24 Helpline can be used 3000 200 224

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Hillingdon Community Palliative Care Team
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Hillingdon Palliative Care Team (hosted by NHS CNWL) provides specialist advice and visiting to palliative care patients living in Hillingdon. Each GP practice has their own named Clinical Nurse Specialist ( CNS ). A Triage CNS manages calls and referrals each day and they have the option to escalate to consultants if needed.

They can be contacted Monday to Friday 8.00am to 4.30pm excluding bank holidays.

Out of hours phone Michael Sobell Hospice 24 hour Advice Line on 020 3824 1268

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Meadow House Hospice Inpatient Unit
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Meadow House Hospice Inpatient Unit

T. 0208 967 5179

W. http://meadowhouse.lnwh.nhs.uk

Meadow House Hospice provides inpatient palliative care services to the residents of Ealing.

The hospice has a 15 bedded inpatient unit supported by a team of dedicated staff providing 24/7 specialist support to patients and their family members. Patients with a progressive life limiting illness can be admitted for symptom management or end of life care.

Patients have a safe, dignified space of their own and the flexibility to spend time alone or in company, surrounded by their possessions and the people they care about. The hospice also has an extensive garden area that provides a quiet and reflective environment for both patients and family members.

Please contact the hospice Monday to Friday 8.30am to 4.30pm and during the weekend 9.00am to 5.00pm on 0208 242 5817.

There is a 24 hour telephone support line to the hospice ward on 0208 967 5597.

Bereavement services to support family members, friends and carers connected to a loved one who was cared for by the Hospice, can be contacted via main switchboard.  

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Michael Sobell Hospice Inpatient Unit (MSH)
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Michael Sobell Hospice Inpatient Unit (MSH)

T. 020 8106 9201

W. https://www.harlingtonhospice.org/michael-sobell-house/

The Michael Sobell Hospice provides a range of palliative services for people with advancing illness.

The Hospice has 10 beds in its refurbished inpatient unit and looks after people with complex symptoms as well as those close to the end of their life.

Many people have a short admission and get back home agian.

The Hospice hosts the 24 hour Hillingdon advice line  on 020 3824 1268

The Hospice is part of Harlington Hospice, and shares the Wellbeing Service with the Harlington team, and hosts the Harlington Hospice@Home team

Please use the referral form below.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Pembridge Community Palliative Care Team (North)
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Pembridge Community Palliative Care Team (North)

T. 0208 102 5383 / 0208 102 5000 (out of hours)

Pembridge Community Palliative Nurse Team (North) provides advice and visiting palliative care patients of Hammersmith and Fulham, Central London and West London.

They can be contacted Monday to Friday 8.30am to 5.00pm.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Planned Night End of Life Care
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Planned Night End of Life Care

T. 0203 370 2208

This is an overnight service and is provided by Marie Curie via Meadow House Hospice for residents of Ealing and Hounslow. This service provides one to one overnight nursing support, symptom control, management of pain, emotional and practical support for patients in their last few weeks of life.

Referrals are made via Local Clinical Coordination Centre Monday to Sunday from 10.00pm to 7.00am.

Marie Curie Planned Night Services Referral Form (DOCX)
Royal Trinity Hospice
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Royal Trinity Hospice

T. 0207 787 1062

W. https://www.royaltrinityhospice.london/

Royal Trinity Hospice provides palliative care services to the residents of Hammersmith and Fulham, Central London and West London.

There is a 24 hour, 7 days a week clinical advice line and OOH access to the on-call consultant.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St John's Hospice at Home
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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St John's Hospice Inpatient unit
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St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St Luke's Hospice at Home
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St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Pharmacies

Alpha Chemist
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 480 Church Road, Northolt, Middlesex, UB5 5AU

Opening hours: Monday and Tuesday 9.00am to 6.00pm. Wednesday 9.00am to 5.30pm. Thursday and Friday 9.00am to 6.00pm. Saturday 9.00am to 1.00pm

Anmol Pharmacy
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Anmol Pharmacy

T. 020 8606 9269

W. http://www.anmolpharmacy.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 97 North Road, Southall, UB1 2JW

Opening hours: Monday to Saturday 9.00am to 9.00pm

Ariana Pharmacy
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Ariana Pharmacy

T. 020 8575 6600

W. https://www.arianapharmacy.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 472 Greenford Road, Greenford, UB6 8SQ

Opening hours: Monday and Tuesday 9.00am to 9.00pm. Wednesday to Friday 9.00am to 8.00pm. Saturday 9.00am to 7.00pm. Sunday 10.00am to 4.00pm

Asda In-Store Pharmacy
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Asda In-Store Pharmacy

T. 0208 607 1020

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: Off Alexander Road, Hounslow, TW3 1NL

Opening hours: Monday to Saturday 9.00am to 9.00pm. Sunday 11.00am to 5.00pm

Asda In-Store Pharmacy
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Asda In-Store Pharmacy

T. 020 8831 2410

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: Tilley Road Feltham TW13 4BH

Opening hours: Monday 8.00am to 11.00pm. Tuesday to Friday 7.00am to 11.00pm. Saturday 7.00am to 10.00pm. Sunday 11.00am to 5.00pm

Asda In-Store Pharmacy
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Asda In-Store Pharmacy

T. 020 8951 9119

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: Park Royal Industrial Est, 2-20 Western Road, NW10 7LW

Opening hours: Monday to Saturday 9.00am to 8.00pm. Sunday 11.00am to 5.00pm

Banks Chemist
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 59 Old Oak Common Lane, East Acton London W3 7DD

Opening hours: Monday to Friday 9.00am to 6.30pm. Saturday 9.00am to 2.00pm

Bayswater Pharmacy
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 39-41 Porchester Road, Bayswater, W2 5DP

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 6.00pm. Sunday 11.00am to 5.00pm

Baywood Chemist
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Baywood Chemist

T. 020 7229 4553

W. https://baywoodchemist.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 239 Westbourne Grove, W11 2SE

Opening hours: Monday, Tuesday, Thursday and Friday 9.00am to 6.30pm. Wednesday and Saturday 9.00am to 6.00pm

Boots the Chemist
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 228-232 Fulham Road, SW10 9NB

Opening hours: Monday to Friday 9.00am to 7.30pm. Saturday 9.00am to 6.00pm. Sunday 10.00am to 6.00pm

Boots the Chemist - Kensington
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Boots the Chemist - Kensington

T. 020 7937 9533

W. https://www.boots.com/stores/884-london-kensington-w8-5sf

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 127A Kensington High Street, W8 5SF

Opening hours: Monday to Saturday 8.00am to 9.00pm. Sunday 12.00pm to 8.00pm

Campbells Chemist
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Campbells Chemist

T. 020 8994 0656

W. https://campbellschemist.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 300-302 Chiswick High Rd, Chiswick, London, W4 1NP

Opening hours: Monday to Friday 9.00am to 6.45pm. Saturday 9.00am to 5.30pm

Care Chemists
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 5 Buckingham Parade The Broadway Stanmore HA7 4EB

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 5.30pm

Caregrange Pharmacy
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Caregrange Pharmacy

T. 0208 740 9443

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 9 Goldhawk Road, Shepherds Bush, W12 8QQ

Opening hours: Monday to Friday 10.00am to 6.00pm. Saturday 10.00am to 3.00pm

Carter Chemist
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Carter Chemist

T. 01923 825753

W. https://www.carterchemist.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 112-114 High Street, Northwood, Middlesex, HA6 1BJ

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 1.00pm

Carters Chemist
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Carters Chemist

T. 0208 8660053

W. https://carterschemist.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 24 Bridge Street, Pinner, Middlesex, HA5 3JF

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 5.00pm

Carters Pharmacy
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Carters Pharmacy

T. 020 8903 4222

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 524-526 High Road, Wembley, HA9 7BS

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 6.00pm

Chana Chemist
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 5 Regal Centre, 402 North End Road, SW6 1LU

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 1.00pm

Churchills Pharmacy
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Churchills Pharmacy

T. 020 8907 3511

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 207 Kenton Road, Harrow, HA3 0HD

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 1.00pm

Clinichem
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Clinichem

T. 020 78281222

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 29 Upper Tachbrook Street, SW1V 1SN

Opening hours: Monday to Friday 9.00am to 6.00pm

Dana Pharmacy
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Dana Pharmacy

T. 01895 639022

W. https://www.danapharmacy.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 100 Victoria Road, Ruislip Manor, Middlesex, HA4 0AL

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 1.00pm

Daya Pharmacy
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Daya Pharmacy

T. 020 8573 3084

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 750 Uxbridge Road, Hayes, UB4 0RU

Opening hours: Monday to Friday 9.00am to 7.30pm. Saturday 9.00am to 6.00pm. Sunday 10.00am to 4.00pm

G.Lowe Pharmacy
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G.Lowe Pharmacy

T. 020 8904 4197

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 203 East Lane, North Wembley, HA0 3NG

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.30am to 5.00pm

Gill Chemist
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Gill Chemist

T. 020 8571 1555

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 31-33 King Street, Southall, UB2 4DG

Opening hours: Monday to Friday 9.00am to 8.00pm. Saturday 9.00am to 7.00pm. Sunday 12.00pm to 7.00pm

Lymphoedema services

British Lymphology Society
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British Lymphology Society

W. https://www.thebls.com/directory/london

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

Harlington Hospice
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Harlington Hospice

T. 020 8759 0453

W. https://www.harlingtonhospice.org/

Harlington Hospice provides a wide range of palliative care services to the residents of Hillingdon and surrounding areas.

The Hospice hosts a Wellbeing Service (shared with Michael Sobell Hospice), complementary therapies, counselling, lymphoedema service and the CABS team supporting children and adolescents.

The Hospice also hosts Harlington Hospice@Home team, mainly providing night sits, plus inpatient beds based at Michael Sobell Hospice (MSH) in Northwood.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
LymphConnect
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LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

St John's Hospice Lymphoedema Care
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This clinic is for patients suffering from lymphoedema in any part of their body as a result of cancer treatment or chronic conditions.

The lymphoedema care provided is free to NHS patients registered with a GP within our catchment area. The NHS service is provided within St John and St Elizabeth Hospital under the hospice or at Charing Cross Hospital.

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