Eating and drinking towards the end of life: Information for carers

Appetite and thirst naturally decrease towards the end of life. This is a normal part of the body slowing down.

What to expect
  • People will gradually eat and drink less, sometimes only a few bites or sips
  • Interest in food may come and go unpredictably 
  • People may become fully dependent on their carer for feeding as their condition changes
  • Coughing or gagging are normal as muscles gets weaker and coordination slows down
  • Eating and drinking usually stop gradually as someone becomes less conscious
Practical tips
  • Let the person choose if and when they want to eat or drink  
  • Offer small amounts of soft food, especially the person’s favourite flavours
  • It is important not to force food or drink onto someone who no longer wants it as this can cause them discomfort
  • Forget scheduled mealtimes—offer food and drink when wanted
  • Continue to offer a variety of soft foods and sips of water with a teaspoon or straw for as long as the person is conscious 
  • Remember to sit them up when offering food and fluids to avoid choking
  • Prepare small, easy-to-swallow portions; liquidising foods can help
  • Use ice chips or a small spray bottle to mist the mouth to keep their mouth moist without giving too much liquid
  • Create a calm, comfortable environment during mealtimes
  • Be ready with practical items like tissues or a sick bowl if needed
  • Frequent mouth care can prevent the person feeling thirsty, and will keep them comfortable when they no longer response to offers

NHS Herts Valleys have produced a helpful leaflet (see downloads) with suggested food and drinks.

If appetite is very poor and calories definitely need increasing food can be fortified e.g. with powdered skimmed milk added to hot chocolate or coffee, +/- a spoon of cream or ice cream.

When a person is no longer able to swallow some people want them to have fluids via other routes like a drip, but at the end of life this offers little, if any, benefit. 

The video below from Hospice in the Weald explains how to approach giving food and drink to someone towards the end of life.

Recommended Resources

Hospice in the Weald Informed Guide to Eating and Drinking Part 1

Published 17th May 2019

Hospice in the Weald Informed Guide to Eating and Drinking Part 2

Published 17th May 2019

Share

Downloads

Related Services

Hospices

24 hour Advice Line Pembridge Hospice
Close

24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

Pembridge Hospice provides palliative care services and advice to the residents of Brent, Central London, West London and Hammermith and Fulham.

This is a 24 hour, 7 days a week telephone advice line.

Referral form for clinician use only.

 

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Community Palliative Care Team (South) - Royal Trinity
Close

Community Palliative Care Team (South) - Royal Trinity

T. 020 7787 1062

Royal Trinity Hospice (South) provides advice and visiting palliative care patients of Hammersmith and Fulham, Central London and West London.

They can be contacted 8am -8pm  7 days a week.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Hospice UK
Close

Hospice UK can help find a hospice, provide infromation and support about end of life care and guidance to plan ahead.

Royal Trinity Hospice
Close

Royal Trinity Hospice

T. 0207 787 1062

W. https://www.royaltrinityhospice.london/

Royal Trinity Hospice provides palliative care services to the residents of Hammersmith and Fulham, Central London and West London.

There is a 24 hour, 7 days a week clinical advice line and OOH access to the on-call consultant.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St John's Hospice Inpatient unit
Close

St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Adult social care services

Adult Social Care
Close

Adult Social Care provides practical support to people to stay safe and well in Westminster, Kensington and Chelsea.

These services are usually provided in people's homes, care homes or in the community. Thre is also support for people who are caring for an adult family member or friend, access to personal care and home care services.

Carer's groups

Carers Network
Close

Carers Network

T. 020 8960 3033

W. https://www.carers-network.org.uk/

Carers Network is an independent local charity reaching over 5,300 unpaid carers in the most isolated and deprived pockets of the City of Westminster, the London Borough of Hammersmith and Fulham and the Royal Borough of Kensington and Chelsea. We have been proudly supporting carers in central London since 1991.

There is help for new carers and a carer's assessment to discuss how to maintain your health and balance your caring responsibilities with other areas of your life. It may also help you get financial support.

Carers Trust
Close

Carers Trust works to transform the lives of unpaid carers through its network of local carer organisations. Carers can access to support, advice and resources to help them manage their role as carers.

Carers UK
Close

Carers UK

T. 020 7378 4999

W. https://www.carersuk.org/

Carers UK offers information and support to carers across the UK. There is an online forum and local support groups for carers. 

Friendship and support

Compassionate Neighbours
Close

Compassionate Neighbours can support by:

  • Visiting weekly for a cup of tea and a chat, offering friendship and a listening ear
  • Helping you do the things you like doing
  • Helping you stay connected to your friends and the community

Overnight/weekend services

District Nurses Night Service Central London and West London
Close

District Nurses Night Service Central London and West London

T. 0208 102 5500

The Dristrict Nurses Night Service is an OOH service for referrals and advice. Please leave a voicemail message if calls are made before 8.00pm. After 8.00pm please call 111 or 0208 969 7777. Please do not leave voicemail mesages after 8.00pm for same night referrals.

Related Articles

19th March 2025

Mouth care: Information for patients and carers

24th October 2024

What to expect when someone close to you is in their final days

Feedback