Caring for a breathless patient at home

This following information is sourced from St Christopher's Hospice and St Margaret's Hospice and Hull York Medical School

Breathlessness is a very frightening symptom - and living with a breathless person can be very stressful.

Having some control over how you breathe, over your thinking and some practical ways to manage everyday activities can really help.

Anxiety and breathlessness are very linked - breathlessness make you anxious - and when you are anxious you breathe more quickly and less efficiently.

Top tips
  • Control your breath - watch the Managing breathlessness video from St Christopher's 
  • Think about your position - to get maximum air into your lungs
  • A flow of air by your nose from a hand-held fan or open window can really help
  • A cool wet flannel over your nose may help
  • What helps you to calm - music, TV, relaxation - try some of the guided meditations below
  • Eat small regular meals that are soft and don't need too much chewing
  • Practical tip - a towelling dressing gown instead of drying with a towel can save energy after a shower
Panic attacks

Think of 4 F's ! Fan, Flop muscles, Forward lean, Focus on long breath out

There are many excellent resources that can help you:

St Christopher's have also produced 4 very short  videos (each less than 4 minutes) 

To help you calm

St Margaret's Hospice have produced some brief videos to support guided relaxation and meditation

Meet and share with other people how to live better with breathlessness, you could try a Breathe Easy group if there is one near you

Sources

St Christopher's - Managing breathlessness

Published 1st April 2023

St Margaret's Hospice Care - Guided meditation

Published 10th April 2023

Hull York Medical School - A guide to living well with breathlessness

Published 1st January 2023

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24 hour Advice Line Michael Sobell Hospice
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24 hour Advice Line Michael Sobell Hospice

T. 0203 824 1268

Offers support and advice on palliative care issues to GPs, Care Homes, District Nurses and hospital doctors.

It is also an Advice Line for patients and families who live in Hillingdon and need advice on any aspect of palliative care. 

The Advice Line is answered by hospice nurses in the Inpatient Unit and queries are escalated to the on-call palliative medical team if needed.

Breatheasy groups
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The support group is a way to learn more about living with a lung condition and share your experiences and stories with others.

Hillingdon Community Palliative Care Team
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Hillingdon Palliative Care Team (hosted by NHS CNWL) provides specialist advice and visiting to palliative care patients living in Hillingdon. Each GP practice has their own named Clinical Nurse Specialist ( CNS ). A Triage CNS manages calls and referrals each day and they have the option to escalate to consultants if needed.

They can be contacted Monday to Friday 8.00am to 4.30pm excluding bank holidays.

Out of hours phone Michael Sobell Hospice 24 hour Advice Line on 020 3824 1268

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V3 (PDF)

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