Identification of end stage heart failure: Information for clinicians

The following are triggers to consider a referral to palliative care in heart failure:

Clinical symptoms and and signs:

  • Worsening breathlessness at rest and often at night when lying flat (New York Heart Association class IV)
  • Increasing oedema limiting function and requiring increasing diuretics
  • Frequent admissions to hospital with fluid overload
  • Reduced mobility, weight loss, poor sleep and reduced appetite (cardiac cachexia) 
  • Nocturnal dyspnoea

Metabolic indicators:

  • Progressive deterioration in estimated glomerular filtration rate (eGFR) , creatinine and potassium levels
  • Hypotension limiting the use of drug treatments
  • Serial increases in Beta natriuretic peptide (BNP)
  • Albumin as a marker of cachexia 

Why is it important to identify

  • As an opportunity to discuss future care and wishes
  • Plans to avoid admission e.g. flexible PRN diuretic plans - oral or subcutaneous
  • Referral to palliative care
  • Prioritise symptom relief for breathlessness, oedema, insomnia and nausea
  • Diuretic review e.g. switching from furosemide to bumetanide which is better absorbed if extensive oedema present (40mg PO furosemide is equivalent to 1mg PO bumetanide)
  • ICD deactivation if relevant

Recommended Resources

NICE CKS - Heart failure - chronic

Published 1st September 2025

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Palliative care advice lines

24 hour Helpline Pall24 for North Brent and Harrow
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24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Heart failure services

British Heart Foundation
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British Heart Foundation

T. 0300 330 3322

W. https://www.bhf.org.uk/

The British Heart Foundation provides information on heart and circulatory diseases.

Patients and carers can get support through the online support groups and communities, advice and guidance about heart and circulatory conditions and managing risk factors.

Pumping Marvellous - Heart Failure Charity UK
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Pumping Marvellous - Heart Failure Charity UK

W. https://pumpingmarvellous.org/

Pumping Marvellous offers support to help people live well with heart failure, to recognise the early symptoms and self-interventions through their community hub.

Community palliative care teams

Harrow Community Palliative Care
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Harrow Community Palliative Care

T. 020 8102 6163

Harrow Community Specialist Palliative Care Team (LNWHT) provides advice and visiting to palliative care patients in Harrow.

They can be contacted Monday to Friday 8.30am to 4.30pm.

They are based at Honeypot Lane Health Centre, 839 Honeypot Lane, HA7 1AT.

Out of Hours the Pall24 Helpline can be used 3000 200 224

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St Luke's Hospice at Home
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St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

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