Managing breathlessness at home: Information for patients and carers

Breathlessness is a very frightening symptom - and living with a breathless person can be very stressful.

Having some control over how you breathe, managing panic and some practical ways to cope with everyday activities can really help.

Anxiety and breathlessness are very linked - breathlessness can make you anxious - and when you are anxious you breathe more quickly and less efficiently.

Top tips
  • Control your breath - watch the Managing breathlessness video from St Christopher's 
  • Think about position to get maximum air into your lungs e.g. leaning forward 
  • A flow of air by your nose from a hand-held fan or open window 
  • A cool wet flannel over your nose may help
  • What helps you to calm - music, TV, relaxation - try some of the guided meditations below
  • Eat small regular meals that are soft and don't need too much chewing
  • Practical tip - a towelling dressing gown instead of drying with a towel can save energy after a shower
  • Do look at the helpful resources section below and review our page on Anxiety towards the end of life
Panic attacks

Think of 4 F's: Fan, Flop muscles, Forward lean, Focus on long breath out

St Christopher's have also produced this video on how to manage a panic attack

To help you calm

St Margaret's Hospice have produced some brief videos to support guided relaxation and meditation

When to seek medical help
  • If breathlessness is new or has suddenly changed. There may be a treatable cause such as a chest infection or fluid collecting around the lung which can easily be drained
  • If breathlessness is very distressing and can't be managed with the strategies listed on this page. Medications such as morphine and lorazepam are commonly prescribed for people who are distressed by difficulty breathing towards the end of life
Helpful resources

St Christopher's have produced 4 very short videos (each less than 4 minutes) 

Meet and share with other people how to live better with breathlessness, you could try a Breathe Easy group if there is one near you

Recommended Resources

Supporting breathlessness

Published 1st January 2025

St Margaret's Hospice Care - Guided meditation

Published 10th April 2023

St Christopher's - Managing breathlessness

Published 1st April 2023

Hull York Medical School - A guide to living well with breathlessness

Published 1st January 2023

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Hospices

24 hour Advice Line Pembridge Hospice
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24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

Pembridge Hospice provides palliative care services and advice to the residents of Brent, Central London, West London and Hammermith and Fulham.

This is a 24 hour, 7 days a week telephone advice line.

Referral form for clinician use only.

 

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Hospice UK
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Hospice UK can help find a hospice, provide infromation and support about end of life care and guidance to plan ahead.

St John's Hospice at Home
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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St John's Hospice Inpatient unit
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St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

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St Luke's Hospice at Home
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St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Palliative care teams

24 hour Advice Line Pembridge Hospice
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24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

Pembridge Hospice provides palliative care services and advice to the residents of Brent, Central London, West London and Hammermith and Fulham.

This is a 24 hour, 7 days a week telephone advice line.

Referral form for clinician use only.

 

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
24 hour Helpline Pall24 for North Brent and Harrow
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24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Brent North Community Palliative Care Team - based at St Luke's
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Brent North Community Palliative Care Team - based at St Luke's

T. 020 8382 8013

North Brent Community Specialist Palliative Care Nurse team provides advice and visiting to palliative care patients in North Brent. The team is based at St Lukes Hospice.

Areas: Queensbury, Fryent, Welsh Harp, Barnhill, Kenton, Northwick Park, Preston, Sudbury, Wembley Central, Alperton, Tokyngton

The team can be contacted for referrals Monday to Sunday 8.30am to 4.30pm. 

After 4.30pm the Out of Hours Telephone Advice line 020 8382 8000 operates and calls will be taken by a nurse on St Lukes inpatient unit

Referral form for clinician use only.

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Brent South Community Palliative Care Team - based at Pembridge Hospice
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Brent South Community Palliative Care Team - based at Pembridge Hospice

T. 020 8102 5000

South Brent Community Specialist Palliative Care Nurse Team provides advice and visiting to palliative care patients in South Brent. The team are based at Pembridge Hospice

Areas: Harlesden, Willesden, Kilburn, Neasden (south of north circular Brent, except the St Raphael's Estate) 

All referrals to be made via the CLCH Single Point of Access Service (SPA) email address and will be processed during working hours of Monday to Friday 9.00am to 4:30pm. Any referrals sent outside of this time period will be processed on the next working day.

For ALL urgent referrals, both in and out of working hours, please also call Pembridge (as per current process) on the 24 hour number above.

For any other email correspondence. clcht.pembridgeunit@nhs.net.

Referral form for clinician use only.

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St John's Hospice at Home
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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St John's Hospice Inpatient unit
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St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St Luke's Hospice at Home
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St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Rapid access services

24 hour Advice Line Pembridge Hospice
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24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

Pembridge Hospice provides palliative care services and advice to the residents of Brent, Central London, West London and Hammermith and Fulham.

This is a 24 hour, 7 days a week telephone advice line.

Referral form for clinician use only.

 

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
24 hour Helpline Pall24 for North Brent and Harrow
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24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

St John's Hospice at Home
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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Cancer services

24 hour Helpline Pall24 for North Brent and Harrow
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24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Marie Curie
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Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

St John's Hospice Lymphoedema Care
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This clinic is for patients suffering from lymphoedema in any part of their body as a result of cancer treatment or chronic conditions.

The lymphoedema care provided is free to NHS patients registered with a GP within our catchment area. The NHS service is provided within St John and St Elizabeth Hospital under the hospice or at Charing Cross Hospital.

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Young lives vs Cancer

W. https://www.younglivesvscancer.org.uk/

Young lives vs Cancer support young people under 25 with cancer, and their families, to get the help they need during their cancer treatment and beyond, including bereaved families living with emotional distress. 

Overnight/weekend services

24 hour Helpline Pall24 for North Brent and Harrow
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24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

St John's Hospice at Home
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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Pharmacies

Carters Pharmacy
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Carters Pharmacy

T. 020 8903 4222

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 524-526 High Road, Wembley, HA9 7BS

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 6.00pm

Churchills Pharmacy
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Churchills Pharmacy

T. 020 8907 3511

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 207 Kenton Road, Harrow, HA3 0HD

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 1.00pm

G.Lowe Pharmacy
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G.Lowe Pharmacy

T. 020 8904 4197

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 203 East Lane, North Wembley, HA0 3NG

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.30am to 5.00pm

Related Articles

2nd April 2026

Anxiety towards the end of life: Information for patients and carers

27th February 2023

Caring at home - practical tips

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