Oedema (swelling): Information for patients and carers

What is oedema?

Oedema is the medical word for swelling caused by fluid building up under the skin. It most often affects the legs and ankles, but can also affect the arms, back, or stomach- especially if you spend a lot of time lying down.

Your body normally keeps fluid moving through your tissues in a careful balance. When illness disrupts this balance, fluid can collect and cause swelling.

What does it look and feel like?

Puffy, swollen or shiny skin 

Heaviness, aching, or stiffness especially in the legs

Pitting -pressing on the skin leaves a dent that takes time to disappear

When fluids collect in the abdominal cavity this is called ascites 

In severe cases fluid may weep or leak through the skin

Why does it happen?

There are several reasons oedema can develop during a serious illness:

  • The illness itself — heart, kidney, or liver problems can affect the fluid balance in the body. 

  • Some medicines, including steroids and anti-inflammatory painkillers (e.g. ibuprofen, naproxen)

  • Spending long periods of time in bed or in a chair

  • Low protein levels in the blood

What can help?
  • Raising legs above hip level when sitting or lying can reduce swelling and ease discomfort

  • Keep moving gently - even small movements and gentle exercise can help fluid circulate

  • Skin care - Swollen skin is fragile. Keep it clean and moisturised, and avoid tight clothing or anything that cuts in

  • Water tablets (diuretics) are sometimes tried by a doctor to help the body get rid of excess fluid. This depends on the cause of the swelling. Swelling due to heart failure will respond to diuretics whereas other causes e.g. due to immobility may not respond.

  • Fluid collecting in the abdomen (ascites) or around the lung (pleural effusion) can easily be drained as an outpatient

  • Compression bandaging may help comfort and reduce weeping legs. This is done by district nurses
What is Lymphoedema?

Lymphoedema is a specific type of swelling caused by damage or blockage to the lymphatic drainage system itself often due to cancer affecting lymph nodes. Lymphoedema doesn't fluctuate (change) with position or medication in the same way as general oedema and it is managed differently. For more information on lymphoedema click here

 

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24 hour Advice Line Michael Sobell Hospice
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24 hour Advice Line Michael Sobell Hospice

T. 0203 824 1268

Offers support and advice on palliative care issues to GPs, Care Homes, District Nurses and hospital doctors.

It is also an Advice Line for patients and families who live in Hillingdon and need advice on any aspect of palliative care. 

The Advice Line is answered by hospice nurses in the Inpatient Unit and queries are escalated to the on-call palliative medical team if needed.

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They can be contacted Monday to Friday 8.00am to 4.30pm excluding bank holidays.

Out of hours phone Michael Sobell Hospice 24 hour Advice Line on 020 3824 1268

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
Michael Sobell Hospice Inpatient Unit (MSH)
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Michael Sobell Hospice Inpatient Unit (MSH)

T. 020 8106 9201

W. https://www.harlingtonhospice.org/michael-sobell-house/

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The Hospice has 10 beds in its refurbished inpatient unit and looks after people with complex symptoms as well as those close to the end of their life.

Many people have a short admission and get back home agian.

The Hospice hosts the 24 hour Hillingdon advice line  on 020 3824 1268

The Hospice is part of Harlington Hospice, and shares the Wellbeing Service with the Harlington team, and hosts the Harlington Hospice@Home team

Please use the referral form below.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Lymphoedema services

British Lymphology Society
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British Lymphology Society

W. https://www.thebls.com/directory/london

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Use the website address above to find your local services.

Harlington Hospice
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Harlington Hospice

T. 020 8759 0453

W. https://www.harlingtonhospice.org/

Harlington Hospice provides a wide range of palliative care services to the residents of Hillingdon and surrounding areas.

The Hospice hosts a Wellbeing Service (shared with Michael Sobell Hospice), complementary therapies, counselling, lymphoedema service and the CABS team supporting children and adolescents.

The Hospice also hosts Harlington Hospice@Home team, mainly providing night sits, plus inpatient beds based at Michael Sobell Hospice (MSH) in Northwood.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
LymphConnect
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LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

Pharmacies

Carter Chemist
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Carter Chemist

T. 01923 825753

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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 112-114 High Street, Northwood, Middlesex, HA6 1BJ

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Dana Pharmacy
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Dana Pharmacy

T. 01895 639022

W. https://www.danapharmacy.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 100 Victoria Road, Ruislip Manor, Middlesex, HA4 0AL

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 1.00pm

Daya Pharmacy
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Daya Pharmacy

T. 020 8573 3084

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 750 Uxbridge Road, Hayes, UB4 0RU

Opening hours: Monday to Friday 9.00am to 7.30pm. Saturday 9.00am to 6.00pm. Sunday 10.00am to 4.00pm

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29th May 2025

Lymphoedema: Information for patients and carers

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