Managing breathlessness at home: Information for patients and carers

Breathlessness is a very frightening symptom - and living with a breathless person can be very stressful.

Having some control over how you breathe, managing panic and some practical ways to cope with everyday activities can really help.

Anxiety and breathlessness are very linked - breathlessness can make you anxious - and when you are anxious you breathe more quickly and less efficiently.

Top tips
  • Control your breath - watch the Managing breathlessness video from St Christopher's 
  • Think about position to get maximum air into your lungs e.g. leaning forward 
  • A flow of air by your nose from a hand-held fan or open window 
  • A cool wet flannel over your nose may help
  • What helps you to calm - music, TV, relaxation - try some of the guided meditations below
  • Eat small regular meals that are soft and don't need too much chewing
  • Practical tip - a towelling dressing gown instead of drying with a towel can save energy after a shower
  • Do look at the helpful resources section below and review our page on Anxiety towards the end of life
Panic attacks

Think of 4 F's: Fan, Flop muscles, Forward lean, Focus on long breath out

St Christopher's have also produced this video on how to manage a panic attack

To help you calm

St Margaret's Hospice have produced some brief videos to support guided relaxation and meditation

When to seek medical help
  • If breathlessness is new or has suddenly changed. There may be a treatable cause such as a chest infection or fluid collecting around the lung which can easily be drained
  • If breathlessness is very distressing and can't be managed with the strategies listed on this page. Medications such as morphine and lorazepam are commonly prescribed for people who are distressed by difficulty breathing towards the end of life
Helpful resources

St Christopher's have produced 4 very short videos (each less than 4 minutes) 

Meet and share with other people how to live better with breathlessness, you could try a Breathe Easy group if there is one near you

Recommended Resources

Supporting breathlessness

Published 1st January 2025

St Margaret's Hospice Care - Guided meditation

Published 10th April 2023

St Christopher's - Managing breathlessness

Published 1st April 2023

Hull York Medical School - A guide to living well with breathlessness

Published 1st January 2023

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W. https://www.pembridgehospice.org/

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Royal Trinity Hospice
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Royal Trinity Hospice

T. 0207 787 1062

W. https://www.royaltrinityhospice.london/

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T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

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This is an inpatient unit with 18 beds

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Palliative care teams

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24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

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This is a 24 hour, 7 days a week telephone advice line.

Referral form for clinician use only.

 

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Community Palliative Care Team - based at St. John's Hospice

T. 020 7806 4040

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Referrals can be made Monday to Sunday 9.00am to 5.00pm.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
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Community Palliative Care Team (South) - Royal Trinity

T. 020 7787 1062

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Referral form for clinician use only.

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Referral form for clinician use only.

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T. 0207 787 1062

W. https://www.royaltrinityhospice.london/

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Referral form for clinician use only.

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Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

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St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Rapid access services

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24 hour Advice Line Pembridge Hospice

T. 0208 102 5000

W. https://www.pembridgehospice.org/

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Referral form for clinician use only.

 

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
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T. 0207 787 1062

W. https://www.royaltrinityhospice.london/

Royal Trinity Hospice provides palliative care services to the residents of Hammersmith and Fulham, Central London and West London.

There is a 24 hour, 7 days a week clinical advice line and OOH access to the on-call consultant.

Referral form for clinician use only.

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Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

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W. https://www.asthmaandlung.org.uk

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W. https://www.cancerblackcare.org.uk/

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Maggie’s

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W. https://www.maggies.org/

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W. https://www.mariecurie.org.uk/

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W. https://www.carers-network.org.uk/

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Carers UK
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Carers UK

T. 020 7378 4999

W. https://www.carersuk.org/

Carers UK offers information and support to carers across the UK. There is an online forum and local support groups for carers. 

Friendship and support

Compassionate Neighbours
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Compassionate Neighbours can support by:

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Services that support children

District Nurses Central London and West London
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District Nurses Central London and West London

T. 0208 102 5555 option 4

W. https://clch.nhs.uk/services/single-point-access-service

District Nurse referrals can be made Monday to Friday 8.00am to 5.00pm.

District Nurses Night Service Central London and West London
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District Nurses Night Service Central London and West London

T. 0208 102 5500

The Dristrict Nurses Night Service is an OOH service for referrals and advice. Please leave a voicemail message if calls are made before 8.00pm. After 8.00pm please call 111 or 0208 969 7777. Please do not leave voicemail mesages after 8.00pm for same night referrals.

The Association for Paediatric Palliative Medicine (APPM)
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The Association for Paediatric Palliative Medicine (APPM)

W. https://www.appm.org.uk/

The Association for Paediatric Palliative Medicine represents all doctors, nurses and allied health professionals working in the area of Paediatric Palliative Medicine in hospital, hospice and community settings. It seeks to support practice and training for all doctors and other health professionals working in this area of medicine. 

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Together for Short Lives have a helpline and family support hub to provide help and advice for those caring for a child with a serious illness.

Overnight/weekend services

District Nurses Night Service Central London and West London
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District Nurses Night Service Central London and West London

T. 0208 102 5500

The Dristrict Nurses Night Service is an OOH service for referrals and advice. Please leave a voicemail message if calls are made before 8.00pm. After 8.00pm please call 111 or 0208 969 7777. Please do not leave voicemail mesages after 8.00pm for same night referrals.

St John's Hospice at Home
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St John's Hospice at Home

T. 020 7806 4027

St. John's Hospice provides palliative care services to the residents of Brent and Westminster.

Telephone response will be received within 2 hours.

Inclusions are: Terminal care last 2 weeks of life, 24 hour, admission avoidance, facilitated discharge and respite care escorting a patient.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Related Articles

2nd April 2026

Anxiety towards the end of life: Information for patients and carers

27th February 2023

Caring at home - practical tips

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