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Agitation and Restlessness in the Final Days: Information for patients and carers

Confusion, restlessness and agitation are common symptoms at the end of life. 

Often the cause is due to a combination of factors, and the first question is whether someone is now in their final days.  Agitation and confusion may be a sign that life is coming to an end and the best approach may be to focus on keeping the person calm so that good memories are created.

Do consider whether physical causes of discomfort are contributing such as pain, nausea, constipation, difficulty passing urine, infection, itching.

Your palliative care team can help to establish if there is a cause which can be easily treated or whether this is part of the dying process.

An approach to care:

  • Try non-medication methods such as reassurance and presence of loved ones, familiar surroundings, objects and music
  • Medication such as haloperidol, levopromazine and midazolam are commonly used to help someone feel calmer
  • Medications are started at the lowest doses
  • Deeper sedation may be needed if agitation worsens
  • The intention is to relieve suffering and symptoms, not to hasten death

Recommended Resources

Marie Curie - Agitation in palliative care

Published 25th November 2022

CNWL Anticipatory medicines - a guide for families

Published 1st July 2020

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Pharmacies

Acorn Pharmacy
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Acorn Pharmacy

T. 020 8959 3520

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address:  641 Watford Way, Mill Hill, NW7 3JR

Opening hours: Monday to Friday 9.00am to 6.30pm. Saturday 9.00am to 5.30pm

CW Andrew Pharmacy
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CW Andrew Pharmacy

T. 020 8883 1559

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address:  32 High Road, East Finchley, N2 9PJ

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 6.00pm

Greenfield Chemist
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Greenfield Chemist

T. 020 8449 0708

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address:  16 Greenhill Parade, New Barnet, EN5 1ES

Opening hours: Monday to Friday 9.00am to 6.30pm. Saturday 9.00am to 1.00pm

Oakleigh Pharmacy
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Oakleigh Pharmacy

T. 020 8361 8681

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address:  253 Oakleigh Road North, Whetstone, N20 0TX

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 6.00pm

Sabel Chemist
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Sabel Chemist

T. 020 8202 3047

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address:  116 Brent Street, Hendon, NW4 2DT

Opening hours: Monday to Friday 9.00am to 6.30pm. Saturday 10.00am to 2.00pm. Sunday 10.00am to 2.00pm.

Simmons Pharmacy
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Simmons Pharmacy

T. 020 8449 7558

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address:  111 Cockfosters Road, Barnet, EN4 0DA

Opening hours: Monday, Tuesday, Thursday and Friday 9.00am to 6.30pm. Wednesday 9.00am to 6.00pm. Saturday 9.00am to 5.30pm

Palliative care advice lines

NCL Palliative Advice Team
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NCL Palliative Advice Team

T. 020 8152 3252

W. https://northlondonhospice.org/get-support/out-of-hours-telephone-advice

The North Central London Palliative Advice Team is a telephone service providing palliative care patients, families, carers, and healthcare professionals (in NCL ICS boroughs) with out of hours advice and support.

The telephone service is available 8.00pm to 8.00am, seven days a week.

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