Lymphoedema: Information for patients and carers

 

Understanding lymphoedema

The lymphatic system is a network of channels and glands (lymph nodes) throughout the body that help fight infection and remove excess fluid.

Damage to the lymphatic system can be caused by cancer, treatment to lymph nodes (e.g. lymph node removal or radiotherapy), deep vein thromboses (blood clots) or skin infections. This damage can then lead to swelling in the body's tissues (lymphoedema).

Lymphoedema can affect any part of the body, but usually develops in the arms or legs.

Early identification and treatment of lymphoedema can prevent it from getting worse.

Treating lymphoedema

There's no cure for lymphoedema, but it's usually possible to control the main symptoms using techniques to reduce fluid build-up and stimulate the flow of fluid through the lymphatic system. These techniques are listed below:

Skin care

Keep skin clean – wash daily with a mild, non-perfumed soap or soap substitute.

Keep skin supple and well-moisturised with a daily application of a bland, non-perfumed moisturising cream.  

Protect from sunburn with high factor cream. 

Use insect repellent in areas of risk and consider antihistamine creams or tablets if there is a reaction to the bite.

Avoid walking barefoot or wearing shoes that cause blisters.  

Check between toes or skin folds regularly and treat any fungal infection.  

Clean any cuts or scratches with antiseptic. 

If there are signs of cellulitis (a bacterial infection of the skin) medical help should be sought quickly for treatment with antibiotics. Symptoms of cellulitis include redness/warmth/pain in the affected skin +/- a fever.

Movement

Simple activities like walking, stretching and heel-raises will help the lymphatic system.

Compression Therapy

Compression garments (socks/stockings and sleeves), bandaging or Velcro wraps to compress the affected areas. This helps drain fluid and reduce swelling.

Manual Lymphatic Drainage (MLD)

The use of massage techniques to move fluid through the lymphatic system. This may be done by a specialist practitioner or a simplified version may be taught to patients or carers.

LymphConnect is an online community to support people with lymphoedema

Please also see this 3 minute video 'About Lymphoedema' by ComptonCare & the British Lymphology Society 

Recommended Resources

LymphConnect - Stages of Lymphoedema

Published 26th September 2023

British Lymphology Society

Published 26th September 2023

NHS UK - Lymphoedema

Published 29th March 2023

Share

Related Services

Cancer services

24 hour Helpline Pall24 for North Brent and Harrow
Close

24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Marie Curie
Close

Marie Curie

T. 0800 090 2309

W. https://www.mariecurie.org.uk/

Marie Curie provide support for patients and carers through terminal illness.

Find information and support through the telephone helpline and online chat via their website.

Other services include Marie Curie nurses, Hospice care, helper and companion services.

St John's Hospice Lymphoedema Care
Close

This clinic is for patients suffering from lymphoedema in any part of their body as a result of cancer treatment or chronic conditions.

The lymphoedema care provided is free to NHS patients registered with a GP within our catchment area. The NHS service is provided within St John and St Elizabeth Hospital under the hospice or at Charing Cross Hospital.

Young lives vs Cancer
Close

Young lives vs Cancer

W. https://www.younglivesvscancer.org.uk/

Young lives vs Cancer support young people under 25 with cancer, and their families, to get the help they need during their cancer treatment and beyond, including bereaved families living with emotional distress. 

Overnight/weekend services

24 hour Helpline Pall24 for North Brent and Harrow
Close

24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Palliative care teams

24 hour Helpline Pall24 for North Brent and Harrow
Close

24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Harrow Community Palliative Care
Close

Harrow Community Palliative Care

T. 020 8102 6163

Harrow Community Specialist Palliative Care Team (LNWHT) provides advice and visiting to palliative care patients in Harrow.

They can be contacted Monday to Friday 8.30am to 4.30pm.

They are based at Honeypot Lane Health Centre, 839 Honeypot Lane, HA7 1AT.

Out of Hours the Pall24 Helpline can be used 3000 200 224

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St Luke's Hospice at Home
Close

St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Lymphoedema services

British Lymphology Society
Close

British Lymphology Society

W. https://www.thebls.com/directory/london

The British Lymphology Society provides a directory of Lymphoedema treatment services.

Use the website address above to find your local services.

LymphConnect
Close

LymphConnect is an online platform developed to help manage lymphoedema or lipoedema, understand more about the condition, share experiences and get support and advice.

 

St John's Hospice Lymphoedema Care
Close

This clinic is for patients suffering from lymphoedema in any part of their body as a result of cancer treatment or chronic conditions.

The lymphoedema care provided is free to NHS patients registered with a GP within our catchment area. The NHS service is provided within St John and St Elizabeth Hospital under the hospice or at Charing Cross Hospital.

Pharmacies

Care Chemists
Close

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 5 Buckingham Parade The Broadway Stanmore HA7 4EB

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 5.30pm

Carters Chemist
Close

Carters Chemist

T. 0208 8660053

W. https://carterschemist.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 24 Bridge Street, Pinner, Middlesex, HA5 3JF

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 5.00pm

Feedback