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Agitation and Restlessness in the Final Days: Information for patients and carers

Confusion, restlessness and agitation are common symptoms at the end of life. 

Often the cause is due to a combination of factors, and the first question is whether someone is now in their final days.  Agitation and confusion may be a sign that life is coming to an end and the best approach may be to focus on keeping the person calm so that good memories are created.

Do consider whether physical causes of discomfort are contributing such as pain, nausea, constipation, difficulty passing urine, infection, itching.

Your palliative care team can help to establish if there is a cause which can be easily treated or whether this is part of the dying process.

An approach to care:

  • Try non-medication methods such as reassurance and presence of loved ones, familiar surroundings, objects and music
  • Medication such as haloperidol, levopromazine and midazolam are commonly used to help someone feel calmer
  • Medications are started at the lowest doses
  • Deeper sedation may be needed if agitation worsens
  • The intention is to relieve suffering and symptoms, not to hasten death

Recommended Resources

Marie Curie - Agitation in palliative care

Published 25th November 2022

CNWL Anticipatory medicines - a guide for families

Published 1st July 2020

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Palliative care advice lines

24 hour Helpline Pall24 for North Brent and Harrow
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24 hour Helpline Pall24 for North Brent and Harrow

T. 03000 200 224

This service was formerly known as Single Point of Access (SPA)

This is a 24 hour 7 days a week helpline providing advice for patients, families and professionals, hosted by St Luke's Hospice for residents of Harrow and North Brent.

Urgent rapid response visits can be made to patients registered with a Harrow GP

 

Pharmacies

Belmont Pharmacy
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 4-5 Station Parade, Belomont Circle, HA3 8SB

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 4.00pm.

Carters Chemist
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Carters Chemist

T. 0208 8660053

W. https://carterschemist.co.uk/

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 24 Bridge Street, Pinner, HA5 3JF

Opening hours: Monday to Friday 9.00am to 6.00pm. Saturday 9.00am to 5.00pm

Collins Pharmacy
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 8-9 Queensbury Circle Parade, Stanmore, HA7 1EY

Opening hours: Monday to Friday 9.00am to 6700pm. Saturday 9.00am to 5.00pm.

Healthways Pharmacy
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Healthways Pharmacy

T. 020 8866 3164

A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 382 Rayners Lane, Pinner, HA5 5DY

Opening hours: Monday, Tuesday, Thursday and Friday 9.00am to 7.00pm. Wednesday 9.00am to 6.00pm. Saturday 9.00am to 6.00pm.

Murrays Chemist
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A community pharmacy which stocks common palliative medicines to support people being cared for at home

Address: 172 Kenton Road, Harrow, HA3 8BL

Opening hours: Monday to Friday 9.00am to 7.00pm. Saturday 9.00am to 2.00pm

Community palliative care teams

Harrow Community Palliative Care
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Harrow Community Palliative Care

T. 020 8102 6163

The Harrow Community Specialist Palliative Care Team (CLCH) provides specialist palliative care, advice, and support to patients in Harrow with complex palliative care needs.

They can be contacted Monday to Sunday 8.00am to 8.00pm.

They are based at Honeypot Lane Health Centre, 839 Honeypot Lane, HA7 1AT.

Out of Hours the Pall24 Helpline can be used 03000 200 224

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)
St Luke's Hospice at Home
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St Luke's Hospice at Home

T. 0208 382 8020 / 8050

St. Lukes Hospice@Home provides palliative care services to the residents of North Brent and Harrow. Respite and bridging packages of care are available for end of life patients.

Please contact the team between Monday to Saturday 9.00am to 5.00pm.

The email can be used for fast track referrals.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Related Articles

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Terminal agitation: Information for clinicians

24th October 2024

What to expect when someone close to you is in their final days

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