Some services differ by area. Select your area so we can show you the most relevant information to you.

Borough selection

Agitation and Restlessness in the Final Days: Information for patients and carers

Confusion, restlessness and agitation are common symptoms at the end of life. 

Often the cause is due to a combination of factors, and the first question is whether someone is now in their final days.  Agitation and confusion may be a sign that life is coming to an end and the best approach may be to focus on keeping the person calm so that good memories are created.

Do consider whether physical causes of discomfort are contributing such as pain, nausea, constipation, difficulty passing urine, infection, itching.

Your palliative care team can help to establish if there is a cause which can be easily treated or whether this is part of the dying process.

An approach to care:

  • Try non-medication methods such as reassurance and presence of loved ones, familiar surroundings, objects and music
  • Medication such as haloperidol, levopromazine and midazolam are commonly used to help someone feel calmer
  • Medications are started at the lowest doses
  • Deeper sedation may be needed if agitation worsens
  • The intention is to relieve suffering and symptoms, not to hasten death

Recommended Resources

Marie Curie - Agitation in palliative care

Published 25th November 2022

CNWL Anticipatory medicines - a guide for families

Published 1st July 2020

Share

Related Services

Palliative care advice lines

NCL Palliative Advice Team
Close

NCL Palliative Advice Team

T. 020 8152 3252

W. https://northlondonhospice.org/get-support/out-of-hours-telephone-advice

The North Central London Palliative Advice Team is a telephone service providing palliative care patients, families, carers, and healthcare professionals (in NCL ICS boroughs) with out of hours advice and support.

The telephone service is available 8.00pm to 8.00am, seven days a week.

Community palliative care teams

Palliative Specialist Community Care
Close

The Community Specialist Palliative Care team provides specialist palliative and end-of-life care in the community to patients with life-limiting illness for residents in South Camden, North East Westminster and Islington.

Please contact the team between Monday to Sunday 9.00am to 5.00pm and Monday to Sunday 5.00pm to 8.00pm call the switchboard on 020 3456 7890 and ask for air-call palliative care team.

Palliative Specialist Community Care - North Camden
Close

Palliative Specialist Community Care - North Camden

T. 020 7830 2905

W. https://www.royalfree.nhs.uk/services/palliative-care?q=%2Fservices%2Fservices-a-z%2Fpalliative-care%2F

The Community Specialist Palliative Care team in north Camden provides specialist palliative and end-of-life care in the community to patients with life-limiting illness, as well as offering support to families and carers.

Please contact the team between Monday to Friday 9.00am to 5.00pm. On weekends and bank holidays, call the switchboard on 020 7794 0500 and ask for air-call palliative care team.

St John's Hospice Inpatient unit
Close

St John's Hospice Inpatient unit

T. 020 7806 4040 / 07725 258767

W. https://www.stjohnshospice.org.uk/our-care/inpatient-care

St. John's Hospice provides inpatient palliative care services to the residents of Brent, Central London and West London.

This is an inpatient unit with 18 beds

Please contact for admissions for advice and Community Specialist Palliative Care.

The office hours are Monday to Friday 8.30am to 4.30pm. Referrals received in the morning are triaged the same afternoon, and those received in the afternoon are triaged the following working day.

If urgent, please follow up the referral by calling us on 020 7806 4040. Out of hours, urgent referrals will be discussed with the consultant on call.

Referral form for clinician use only.

Community Specialist Palliative Care Referral Form V4.2 (DOCX)

Related Articles

4th July 2024

Terminal agitation: Information for clinicians

24th October 2024

What to expect when someone close to you is in their final days

Feedback